Showing posts with label awe and wonder in autism. Show all posts
Showing posts with label awe and wonder in autism. Show all posts

Monday, September 28, 2015

One Fine and Marvelous Day

He stands in a corner engrossed in his toys. Teddy bears in one table, picture cards in another. His toy ladle and cooking pot is lined up with his cars. He hums a tune. He holds his boat and flicks it. He is fascinated by his flicking. From afar the boat is already a blur. For him the same blur is his source of calm, order. It is his play. It is his world. 

I finish making his toast bread and wonder if I should continue my readings on mobility. I decide not to and pick up his basketball. I begin dribbling. He does not mind me. I call out to him, "Garret come, play with mama." He looks up briefly  then continues to flick his boat. I continue dribbling, and shoot the ball in the basket.  I prod him again. "Garret it's your turn." I vary the tone of my voice-- Sing-song. He gives in after a few moments, approaches me and I pass the ball to him. He catches it deftly and begins dribbling it immediately. We go back and forth, my turn, his turn. No smile at first then eventually a grin, him forgetting his toys and actually begin to enjoy playing with me. For thirty minutes we play ball non-stop. Laughter. Enjoyment resounds in his laughter. I laugh too. We laugh together. We are in each other's company, basking in one another's laugh. All sweaty, he gets his water bottle and rests. I rest too. But my heart is beating like that of drums emanating a festive symphony of gratitude and wonder at the miracle that just transpired. 

Not too long ago I wondered whether he will ever know me as his mama. Not too long ago I wondered whether he would know my love for him. Not too long ago I wondered whether he would ever reach out to me, acknowledge me. Not too long ago I wondered about many things. Today was the future I wondered about, that I so feared, that I was so uncertain of yesterday. 

And today, as I invited him to come enter my world, my son laughed and played with me. 

Today was one fine and marvelous day.

Thursday, November 1, 2012

My Prayer for Today

"Garret, please bring these to the kitchen.", I requested of my little prince this morning, referring to the biscuits and water bottle in our room from the night before. He willingly took it from me and brought it to the kitchen as I went back inside to our room to finish making the bed. As I was tugging the corners of the bed sheet, a thought tugged at the corners of my heart as well --My little prince can already do what is requested of him. Translation- do simple chores, or help around the house, or simply help me as I am cleaning up our room. What a wonderful thought, I realized. But then again, this milestone of his is just one of many wonderful things that we have been blessed with.

Everyday miracles and life lessons have come tumbling out and so overwhelmed I have been that the only way I have written about it was to declare it on FB as my status. Short, brief sentences that aptly describe the moments as I remember it clearly. Posting it right away for fear that it will dissipate into some faded memory.

I remember sometime around March last year how I had just begun writing this blog, when it seemed as if words just came rolling out, my mom , in one of our many conversations asked me and later admonished me, "How is your prayer life? Don't forget to pray, Bea. Remember that it is in prayer that you draw your strength and wisdom as a mom and as a wife." I responded to her, "Mom, when I write, I am speaking to God. This is my prayer."

Of course, all the FB statuses I posted was all filled with the intention of consolidating it later on into one lengthy prose, or blog post as we call it nowadays. Or, remembering how I answered my mom-- one lengthy conversation with my God, one long prayer of gratitude.

How do I begin?

Do I begin by narrating again such wonderful moments to relive the magic and beauty in all of it? Nah, too redundant. Then again, I believe gratitude can never be redundant. Being grateful for every blessing I have been given can never be enough. And who is to say that prayers need to be filled with only one request and one thanksgiving, and should be said only once?

So here goes.

Thank you God, Heavens, Universe for moments like these:

Garret learning to eat on his own, returning his plate to the kitchen.
Garret learning to share his toys with Morgan, learning to be a big brother.
Garret exploring different textures of food, eating the french toast I made, eating breakfast with us.
Garret learning to be compliant, obedient, behaved in different places as when his papa took him to a Rotary event at a public high school. Garret just sitting down, observing the people and his surroundings.
Garret recognizing the letters of his own name, and writing it with so much enthusiasm and fervor that the walls of our home boast of the artistry of his handwriting, the beauty of his name.
Garret singing not unlike the cherubim with such effortless grace, with such pure harmony.
Garret dancing to a hip hop soundtrack to the movie we watched last night.
Garret responding (echolalic or not, I don't really care) to my I love you with a clear "YOU."

Morgan learning to sit through the entire sped class without whining or crying.
Morgan learning to carry his own backpack, removing his own shoes and putting it on the shoe rack at school.
Morgan happily imitating the actions of his teachers during circle time. "Sit down, sit down, we're rocking the boat..."
Morgan mastering the shapes of his mickey mouse form board.
Morgan learning to play with water in his mouth, gargle and spit (motor planning skills)
Morgan saying, "Go" for when he wants to go home or go out to play in the garden.
Morgan, while waiting for his papa to pick us up from school saying, "An-doo" (for his papa Andro)
Morgan calling my name "Bea (Bee-ya)" when I wasn't around as if looking for me, asking where I was.
Morgan pouting his lips for a kiss or puffing his cheek when I ask him for a kiss.
Morgan calling me "momma" in beautifully rare moments.

The list does not stop here. Miracles happen everyday. As my two boys have taught me this one poignant truth among many, I in turn am grateful for all the little things, everyday miracles that make up my world, that create my life, that beautifully design our life.

While autism is a clear and everyday reality for our family, we've finally learned that one important thing that will allow us to live out the greatest gratitude of all to the heavens, more than poetry, prose or blog post, it is this lesson, this decision that we've come to make, this life perspective-- we cannot let our fear of the future for our boys,the challenges that we face everyday overshadow the amazing miracles that happen day by single day. Rhonda Byrne said and I quote, "Life does not happen to you, it responds to you." The quality of our life is not a result of fate or circumstance. It is a result of our attitude towards life, it is the consequence of our everyday decision to accept whatever there is to accept about autism, do what we can about it, help our boys the best way we can for them to survive in this world and carry on with life with awe and wonder and a joyful and grateful heart.

So as I have challenged Autism many times before with a bullheaded, angry pride, I say this now with a more calm and discerning tone and disposition, "Is that all you've got, Autism? Because THIS is what we got. So why don't you bring it on? :-)" (Yes, complete with a smiley face.)

Some of my readers commented how they were always in tears reading my posts, probably because they were feeling the pain I wanted to express while experiencing one of the dark days of autism, especially those days where nothing really made sense. Well, now, I think I can say, every once in a while even through the thickest and gloomiest of clouds, the sun breaks through. I can't say I've come or my family and I have come full circle because there is still more to life. We are still young. And we still have numerous lessons to learn. But I think I can say we've taken the first step, breaking the shell of our pride and human wisdom and entering into this world of wonder, joy and gratitude-- the beautiful world of our two beautiful boys, our two royalties little Prince Garret and our feisty king Morgan.


"Your pain is the breaking of the shell that encloses your understanding...And could you keep your heart in wonder at the daily miracles of your life, your pain would not seem less wondrous than your joy." -Kahlil Gibran-


My prayer for today-- Thank you God for everyday miracles. I am in awe. My heart is filled with joy. I am and will eternally be grateful.