Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Monday, August 19, 2019

Silang Duha Gyud

"Ang duha jud Ma'am noh?" is the usual comment when people know that my two boys have autism.

Many years ago this statement would have added to my depression. Now, I answer with a light heart, "Oo, silang duha." Both of them. Garret and Morgan have Autism. Which only means that I get double the lightness of their being, the pureness of their heart. This is not to say that our life is all rainbows and sunshine. Far from it. It is dark clouds and thunderstorms. It is humidity at its worst. It is darkness as well.

Garret and Morgan have different personalities which makes our life more interesting. Morgan is the Yin. Garret is the Yang. Sometimes they switch. When I think about it I marvel at how beautiful it is that the Universe decided to give us these-Two sides of the coin. Two parts of a whole. Darkness and Light. Both of them teach me that everyday is a chance to be brave, to show up, to savor and be grateful for every little moment that is and always will be a miracle.

"How do you do it?" is another question that I often hear as well. Many years ago I would have broken down and wept and be overcome with fear and uncertainty . Now I break my heart open easily for all to see and say, "It is simple. I do love. For both of them. All the time."

Silang duha gyud. Both of them no less. I say this now with a light heart because I know now how to do it. How I have been doing this everyday living and thriving with autism in our blessed life--Love and always love.


"When you find out that there was never anything in the dark side to be afraid of....nothing is left but to love." - Alan Watts




Thursday, January 25, 2018

These Wonderful Things

Garret marches around the room flicking his blocks, red and green. His favorite song is playing. "Horsey-horsey, don't you stop, listen to your hoofs go clickety clop..." His legs and feet raise in time to the music. I sit and watch him go. The song stops and he comes to me. "Bwock," he says showing me his red block. "Block, " I say back. And then, "What color is that, Garret?" He replies, "Gween." He has on his face a mischievous smile that tells me he is messing with me. He waits for my reaction. "Red man gud na!" I say in return, laughing. At this his eyes crinkle and a hearty laugh breaks out. We go on like this a few more times.



Morgan places his legs on my lap signaling me that he is ready for his morning massage. He gets the roller bottle of oil on the table and hands it to me. I rub it on my palms. He directs my hands to his nose and breathes in the scent of his favorite peppermint. As I massage his big toe, he tilts his head and looks at me. He smiles and murmurs what sounds like, "Maaa-maaah." "Yes, my love?" I say to him. He smiles at me and pulls me in for a tight embrace.



Garret will turn 13 years old a couple of months from now. Morgan just turned 10 years old. Everyday I marvel at the place we have arrived at. I remember every step of the journey we have taken to get to where we are. All the wonderful ones and all the not so wonderful ones. But all equally necessary to bring us to now. The road ahead is far from over. We are all works in progress-- My boys growing into who they are meant to be and me burgeoning from my many different elements and infirmities. And while it may seem I already have the answers for the past decade or more, I still ask the hard questions, " How shall we get by? How shall we overcome" Because so long as change is continuous, so the answers are ever evolving. 

Today as I sit and write, I smile as I remember last night when Garret and I laughed over and over at our exchange of "Gween bwock" and "That's red" and as I remember Morgan's way of looking at me more intently as he tilts his head and pulling me in for an embrace just because he wants to. My heart is full and at peace as these things transpire. Perhaps these wonderful things are  how we shall get by, how we shall overcome-- by our shared laughter and our acts of love. That even as the storms come, as they surely will, the laughter afterwards will be richer, and our ways of showing our love,  more meaningful.

Namaste. 

(Photos taken August 2013 at Visayas State University. Garret is 8 years old. Morgan is 5 years old.)


Monday, January 8, 2018

Silver Lining

It is Sunday afternoon. Our old Koi pond sans Koi is filled with fresh water. Our boys don their trunks and play in the water. Morgan grabs my hand gesturing me to be with him.  Garret kicks the water happily. Morgan hands me the water bucket. He wants me to fill it with water and then pour it over his head. I do. Many, many times. He does not want me to stop. I do not stop. He laughs loudly in delight. Garret walks in the water splashing it with his legs and arms then slides his body forward, stands up and does it again. The water bucket runs out of water and Morgan asks me to fill it again and pour it over his head.  We go on like this for half an hour or so.

It is the 7th day of the new year and already, it seemed the path has been reiterated for me, as a mother at least. The past few days have been difficult. Garret's transition into adolescence has reared its unpleasant head. Hormones gone awry leave him in a disarray which in turn leave me in as much, if not,  worse disarray. Tears overflow. Questions arise: Why my boys? His eyes somehow ask too or plead with me,  "Why me, Mama?" Or " Help me, Mama please."  We both know how it ends--exhaustion in each other's arms. And then in a few minutes it seems as if there was no storm that passed at all. My son finds his calm and peace envelopes us for the next few hours or days.

I've read the literature on tantrums and meltdowns. Figure out the triggers. Teach them to communicate better. On and on the strategies are laid out. And over the years, the reality of autism never really sinks in until you are facing it yourself. While the immensity is present everyday, the smallest details and happenings come in waves. It is easy to become complacent as much as it is easy to try to control things. The struggle to find balance between going with the flow and setting conditions that eliminate triggers for my son is one that is important needless to say. Because even as autism is a constant, the triggers are ever changing and his reactions to them as well. 

This afternoon as I stand in the pond with my boys, I bask in their laughter, their joy, in the simplicity of their needs and in the complexity of the workings of their minds. I let my heart be quiet. I hear myself breathe. And a thought comes over me: In the dark clouds that hover, there is, as they say,  always a silver lining.  But the gift here is not the silver lining as much as the awareness of that silver lining. The attention that I am able to bring into my consciousness so I may recognize the cracks which let the light in. Because truth be told, the blessing in every adversity, the opportunity in every setback is ever present, like an invisible cloak holding space for us.  The cracks, the blessing, the opportunity, the invisible cloak in the beautiful presence of family, friends and teachers will be of no use if I am not present, if I am not paying attention to each moment, every murmur from my child, every controlled scream, every ragged breath, if I am not bringing my entire being into the smallest details. So even if it hurts, even if my heart breaks every single time, even if I question why, I embrace what I am called to do in this life, to be truly present with and for my boys, to be fully aware and to pay attention to everything that happens around them and to them.

The sun has begun to set. Though clouds hover overhead, there are slats of light bursting through, lining the thick gray tufts. Garret is tired and gets out of the pond. Morgan wants to stay a few minutes more. I tell him, "Five more minutes and playing is done." He complains a little. I soothe him saying we can play again tomorrow. It is only the 7th day of the new year and the path has been reiterated for me-- that of being fully awake, of being truly present, that of love. And only love. I look up and I see it, the beautiful silver lining.





"When you master the art of being fully awake to this moment, you bestow a precious gift on your soul-- the experience of love." - Debbie Ford

Photo taken March 2013. 

Thursday, March 23, 2017

Speak

So much of how we speak are
Eyes, ears
Lips, nose
Cheek

Hands, fingers
Arms
Belly, knees
Legs, feet

Toes
Water hoses and hoses of it
Paper strips
Pink things
Sighs, cries, laughter

Lined-up legos
Creased brows
Hums, drums
Falsettoes

Holding
Squeezing
Gentle, tender
Light, quiet
Joyous shrieks
Snores, breaths
Face tilts
Teddy bears
Deep sleep.

So much of how we speak,

So much of how we love,
No words,

Just these.

"But we loved with a love that was more than love." - Edgar Allan Poe

Tuesday, March 29, 2016

On Your Eleventh Year of Life

Eleven years old today
And still all I can say is,
I love you,
I love you,
I love you

Words ring from
a distant past,
"You could have been This or That,"

But it doesn't matter
Because what does is
Now.
Here.
You,
You are This--
Beauty come alive
Love made life
And you are That--
Formidable,
Unconquerable
Relentlessly beautiful

Our one of two magnificent truths

So, yes,
On your 11th year of life,
and countless years more,
Our dear Garret
My eternal Little Prince,

I. 
Love.
You. 


Thursday, August 13, 2015

Bigger

The world is too big for us, Mama.
My boys seem to say

The sounds are too loud. It's not that we don't listen. We do.
To everything. All at once. Oh how they hurt our ears.

The grass is too sharp for the soles of our feet.  Some shoes
are too tight, socks too rough. Shirt tags are like
pinpricks on our backs.

People are too loud, move too fast.

People staring at us-- too painful. Please don't force us
to make eye contact.

The world is too big for us, Mama.
My boys seem to say.

Oh, my boys, I'll make everything small 
for both of you
I'll hand you the world in bits and pieces
slowly, gently, softly.
And know this, my boys, your mama's heart
is bigger, greater than this world 
that beleaguers you. 

Know this my boys,
I. 
love.
you.




Saturday, June 1, 2013

Autism Proof


I never thought the day would come when I would be explaining to my son why I spanked him. But it did. And for me, for us in our family, this is another milestone achieved. It's not so much as me explaining to him why I had to do it as it is he understanding my explanation. As in really understanding the events that led me to him spanking him. And perhaps truly understanding the most important reason of all.



Garret is 8 years old. He has single words now here and there. A-koo (Apple), Ana-na (Banana), Graesh (Grapes), Fish, Skweh (Square) among those that are more or less consistent, clear and unmistakable. Two word-phrases still elude him though. Conversations, all the more. But I haven't lost hope. If there's one thing I still believe, it is that one day, my little prince and I will be talking under the sun, the moon and the stars non-stop. One day. And I could just imagine the things we would talk about. Or maybe I will just gape in wonder at him when the time comes and he will be doing all the talking.

Language is expressive and receptive. There can be no true language without both. Expressive language obviously can be measured by how much a child speaks and how he speaks, uses the words, etc. Receptive language, on the other hand can be partly measured by how much a child expresses himself. And this is where the discrepancy happens, I believe. Because so much of what a child understands does not necessarily translate into verbal responses. After all we have what we call "choices". Even at a very young age, children begin to practice making choices, choosing what to answer. Yes or No. Cake or Ice Cream. Blue or Red. Behave or misbehave. And it seems, as they grow older, mental mapping, reflection, pondering, processing any input from the environment all the more contribute to the quantity and quality of verbal responses and behavior, of course. I would love to cite a reference for this paragraph but I think I do not need to because these few sentences are products of what we all experience. Common sense, you may call it, don't you think?

So back to the point of this blog post. Two nights ago, I spanked Garret. Our newly-cropped ears Dobe, Riley was trying to play with him, licking him as he went out of the room,which Garret does not like. So he pinched the ear of Riley. I called his attention once. Still he did not heed my reprimand. He pinched Riley's ear again. This time I swatted his bottom with one firm smack. He looked at me, went to our room and hid under his pillows. His papa called to him. He refused to approach his father. He sobbed quietly, looking at me like it was my fault he was crying, which of course was understandable. It went on like this for 10 minutes or so until I couldn't take it anymore and approached him. He was lying face down. I did the same beside him and put my arm around his back. I stroked his hair and said, "Garret, I spanked you because you did not listen to mama. Riley's ears will get hurt if you pinch it. And I have to spank you because you have to learn to listen to what mama says." Or something like that. I tried to make my words really simple and easy to understand. He looked at me, tears in his eyes. I continued, "Mama spanked you because Mama loves you." At this, I left him alone to process everything I said. After three minutes or so, he stood up and joined Morgan jumping on the bed, smiling slowly as if nothing happened. And that was when it struck me, as in really struck me-- Garret understood me. Really understood what I just said. In his own non-verbal way. Actions do speak louder than words ever will. He understood more than any two-word phrases and sentences could ever measure. But more than anything, I was amazed at the thought that what I said got through to him. Somehow beneath the seemingly sound-proof walls that autism builds around the world of my son, my words were autism-proof. I connected with my son on a different level, and he connected with me. And that meant everything. Because just when I was up to my neck with self-doubt and on the brink of losing my patience and perhaps some parts of my faith all together, a breakthrough like this happens.

So what have I learned from this? Three things: One, language is more than just spoken words. More importantly, it is seen, clearly seen in what is not said. What I say, what I do, my little prince is taking it all in. As Morgan does. They understand everything that goes on around them in their own way perhaps even in a more hypersensitive manner. They may have autism but they may be more in tune with life than I am. So this is a note to self in my other aspects in life as well. I have to be more sensitive to body language, facial expressions, subtle nuances that people I interact with, communicate with me. Sometimes, words only serve to cover what is the truth.

Two, even if I begin to lose hope and question if any of what I'm doing as a parent is ever working, even if I forget the one true thing that gets my boys through, the one powerful force that nothing could ever surpass, the Universe does not forget and somebody up there is just taking it all in as well. And when the time is right, he / she tells me, shows me in his own verbal and nonverbal way as well, like saying, "I did not forget. And here it is, what you need. I may have had to postpone some miracles so you would learn the value of patience, discernment, reflection and gratitude always. And I did this for no other reason than because I love you." Well, what do you know, my stubbornness and know-it-all attitude is also given a firm smack on the bottom.

And three to wrap it all up in one tidy neat bow: Love, what I have for my boys, what the Universe has for me unconditionally, is autism proof always. :)


Saturday, September 29, 2012

The Song of the Skies


My baby sings with all his might
singing with the sun, the moon, the stars
with all the sounds of the earth
under the majestic, heavenly skies
No matter there are no words
deciphered, only hums and drums
but still he sings
with all the wonder in his eyes
Our child explores
for the first time,
it seems
Our face, our voice, our love
in the most concrete of ways
Our words of " I love you's"
no longer disappear into the
universe's dust,
he hears us,
he bids us,
"Come mama, come papa"
Come into my world,
This is why he sings
This is why we sing
the symphony of the heavens,
the song of the magnificent
magnificent skies...
Thank you great sun, thank you!




Saturday, July 7, 2012

So This is What Motherhood must be...

A distant but very vivid memory...Elementary 1990. After a long day at school mom would pick us up and on our way home, when the rain would beat down and fog our car windows, after boring myself with drawing letters and shapes with my forefinger from the inside of the car, I would usually fall asleep on my mom's lap at the backseat. Her hand would gently stroke my hair and she would sing and hum as I would fall into a nap. With the traffic of Don Jose Avila Street to Cabangcalan, Mandaue, I had pretty much had a quite amount of time to enjoy my slumber.

Fast forward to college. 1998.In between classes I would usually kill the time at the library. Yes, I'm quite the geek, thank you very much. But not really, the library was just the most conducive place to hang out what with the air-conditioned facility with big tables, books, quietness. Did I mention big tables? This was not only for studying, you know, sleeping was one of the activities done in this conducive place for learning. Anyway, I'm getting off track here. Memories do that when they come in a barrage of flashbacks. Moving on. In my free time I would keep at it with my "poetry" or just writing words I felt like writing on my blank journal. Yes, there was no facebook yet during that time. Blogs were like from outer space for me. Internet was even an obscure concept for me. So journals and diaries were the ways to express my "creativity". In one of my presumably created poems, I wrote about how I would become a mom myself in the future and my little girl after a long day of playing at school would fall asleep on my lap and I would hum her a little song that would carry her into a deep slumber. At the time, I merely imagined what it would be like to finally be a mother. To hold a child in my arms. One to call my own. I read it again a few years ago, already with Garret in tow that time and I was amused at how cheesy my choice of words were. But at the same time I was amazed at how the emotions that brought forth that writing back then were as clear as they were in the present. Somehow I think even before I knew one of the things I wanted to be when I grew up was to become a mom.

July 2012. Last week. With Morgan's sleeping pattern gone awry and completely unpredictable, we have tried every possible strategy. Don't let him take naps in the afternoon so that he would sleep straight in the evenings. We'd have heavy work activities in the afternoon so that he would tire out. We would let the caregivers sleep beside the boys so that they won't have a chance to whine and make "langi" with mama around. Sometimes it worked, other times it just wouldn't. I've exhausted all reasoning, blaming all this on autism or is it just one of those "youngest sibling" syndrome manifestations that my little one wants all the attention. I don't know which is which already. Anyway, in one of our "strategies", with no nap for my king, we drove around the city. And what do you know? Morgan's eyes were getting droopier by the minute until he finally fell asleep. I positioned him gently on my lap. He curled up like a baby, breathing deeply. Snoring even. We drove around till the sun went down.

I realized, this is exactly what I wrote about many years ago in that college library.Having a little one curled up asleep on my lap. How deeply different it is to be the mother this time. How wonderfully different it is to be the one who lulls your child to sleep. I read once that one of the most beautiful joys you can ever experience is having a child fall asleep in your arms. Very true. I think it has something to do with that amazing power, that intuitive ability to be able to allow your child be in a restful state, to see your child in his most peaceful aura, to see one of the most defining moments of what you define as joy and the very purpose of your life as you know it. But most of all, I realized all at once this profound yet simple declaration, "I am a mother now." Of course it has been 8 years since I've been a mother. I realize that every single day. But to remember my musings way back when I had the least maturity and now with this reality. I am amazed. Mostly because motherhood has been so beautifully fulfilling, albeit bittersweet at times but beautiful always. One of the most amazingly life-changing experiences in a woman's life. To be able to care for another human being with all your heart and soul, body and mind (lawas ug katarungan). And more than anything, I realize with my heart in my throat this time, how blessed I am to mother my boys, Garret and Morgan, my two handsome, amazing pieces of royalty. They live and breathe the very essence of life itself-- mystery, uniqueness, pride, humility,kindness, compassion, courage, fortitude, love, above all. And to witness these every single day in my boys' faces asleep or kicking about in the day-- the Universe has been, and is, so good to me.

Even before I knew I was going to have a family of my own. Even my close friends from high school predicted that among the four of us, I would be the one to go through this journey first. How right they were. I knew that. They knew that. But what I didn't know was how my life was going to be changed so deeply, so profoundly, so resonantly, by being a family woman, by being a mother. And what I didn't know was that even if I was given a chance to change one thing in my life, this would definitely NOT be it. Even with autism in the picture.

Last night. July 6, 2012. I finally found a way to make my feisty king sleep. I carried him in my arms and bounced him as usual on the vestibular ball, but this time I sang to him a lullaby..."Rock a bye baby on the tree top...." It didn't matter that it was already past 12 midnight. Morgan finally fell asleep in my arms, breathing heavily, snoring just a bit. Transferring him to his bed, I breathed deeply. As I closed my eyes I once again thanked the universe for everything in my life. Looking over at my two boys, Garret on his bed on his tummy, Morgan on his back, the most peaceful look on their faces, just like a new born baby. So this is what it feels like to finally be a mother. Heavenly.

Postscript... We beat the sleep monster of autism last night...So this is what it is like to be a mother-- to find all ways and means to beat the crap out of whatever hurts or disturbs my boys' peace. Whether you call it autism or by some other name, motherhood beat the crap out of it last night. :-)

Saturday, June 30, 2012

Days of Grace

Sometimes when words fail me, photographs save me...



The cool breeze of the afternoon air, the soothing sun rays bursting through magnificent clouds...and our son in his quiet place of joy...Is there anything else more of a sight to behold?


"Just remember it's the cracks in your heart that let the sun shine in..." -Steve Holy-



Bianca, our dobe, understanding my little prince for all that he is, fully.


Our adorable, feisty Morgan...






Our two boys...oh how beautiful...

And all these under one magnificent afternoon sky...

Thursday, February 10, 2011

Fingers Intertwined

           I was preoccupied with a million things in mind this afternoon as Garret and I were on our way home from his therapy. I'm used to him sitting some distance away at the backseat of our pick-up truck. He sang his usual song that only he understands while being mesmerized by the light that passes through the giant acacia trees hovering over the streets. Whenever I try to hold him, he wriggles away from my grasp. So, I let him be. Instead, I prod him, "Garret, give Mama a kiss." He willingly complies. I do this constantly to remind him that I am with him and that I love him, hoping somehow, he understands. Perhaps I also do this to assure myself that there is a bridge albeit small that connects his world and mine. This is what I hold on to to get through the day. When he does give me a kiss, I am content. Still, I silently pray that the day will come when he will be the one to ask me for a kiss. But then, I shrug the thought away, reminding myself I should be grateful for all the little things. Garret has come so far.  As we were nearing home, me still pondering on what the future holds for us, I suddenly felt his hand reach for mine. This broke my reverie. He intertwined his fingers with mine. I looked at him. He was looking out the window and kept on mumbling his song. But his fingers still clasped mine. And all that went through my head was, "My little prince reached out and held my hand." With no words, frills or complexities, in that moment of a million moments in the universe, Garret did more than ask for a kiss. Perhaps he was reminding me this time, "Mama, I am here. And I know you love me. I love you too. It will all be alright. I looked at the sky, breathing in deeply the beauty of the moment and I clasp my son's hand tight, as if hanging on for dear life.